Meet the brave four year old battling Niemann-Pick Disease Type C

Eddie Sharp, who lives in Manly Vale in Sydney
Eddie Sharp, who lives in Manly Vale in Sydney's north, was diagnosed at birth with Niemann-Pick Disease Type C - a genetically inherited disease that can cause irreversible brain damage.

Meet Parker and Woodrow, two AZ children with a rare disease

Niemann-Pick - EURORDIS

Meet Parker and Woodrow, two AZ children with a rare disease

Valley baby showing great progress with experimental Niemann-Pick

What You See and What You Don't: Diagnosing Niemann Pick, Type C

This Post is for Laurie

Virginia girl, 8, is suffering 'childhood dementia' as her body

This Post is for Laurie

Campaign Program — CAMPAIGN OAAT

Campaign Program — CAMPAIGN OAAT

Campaign Program — CAMPAIGN OAAT

Parents of twins with Niemann-Pick find a treatment

This Post is for Laurie

Parents of kids with Niemann Pick C advocate for adrabetadex